Hello my beautiful people.
So today is the first day since I had my transplant that I've had an extended period of time by myself and I'm loving it. I feel like for the past 4 and bit weeks I've just been surrounded by people and I'm a people person I am and I enjoy being with people but I do like time to myself just to chill out and do things I enjoy doing without having to worry about anybody else. Also it's nice not to have to answer the question "How are you doing?" "Are you okay?" and all it's other various different forms of the same questions about 20 times a day. I know it's people just caring and worrying but sometimes I just want to be like Shush!
I've been home a while now and I've had 2 clinic appointments since I've been home which is crazy because everything just seems to be going so fast. There's been lots of adjustments since being home. I've got my head around my medications now I think. I'm currently taking them at 6am, 8am, 10am, noon, 2pm, 6pm and 10pm which isn't bad in the grand scheme of things and that will start to become less when I come off of the Nebulisers that I am doing and a few others go away after a certain amount of months so that's all good. The Nebulisers are a particular pet peeve of mine though. They tie me to the house because I have to do them at 6am, 2pm and 10pm and because it's a machine I can't take it with me so I think once they're finished I'll be able to get out and about a lot more. The pills side of it hasn't really been too much of a adjustment though because there really isn't that many more than what I was taking pre-transplant which has been a happy surprise.
I think the exercise is more of an adjustment for me because while I wait for the cardiac rehab people to get a hold of me I'm having to force myself to get up and do things which isn't that hard anymore but I have days like today for instance where I would quite happily just sit and watch Wimbledon all day. Food has now become the devil! Not that it wasn't before but now I no longer have a barrier that stops me being able to eat. Before transplant when I ate I would get out of breath and I physically couldn't eat anymore because my lungs just wouldn't let me so I had that barrier to be able to stop, the problem? Well with these brand spanking new lungs that barrier is gone so I can eat way more than before. It's annoying I actually have to have will power to stop now :-/
CHOCOLATE! Now the reason this is in capitals is because I no longer seem to like it.... Yes you read that correctly. I've been trying it every single bloody day since about the first week I had my transplant and it tastes rank! Everyday I get the same disappointment and let down of tasting chocolate that previously tasted amazing and at the moment just doesn't. The only way to describe the taste is that it tastes like it's gone off or something and it's very annoying. I love chocolate and I cannot believe it's the one food I seem to have gone off since my transplant. I mean it's probably good in the whole grand scheme of things and my weight will appreciate it but I mean why chocolate?! Of all the foods in all the world to go off of why chocolate?! I'm hoping it's just one of the drugs or the Nystan that I have to put on my tongue after ever meal which will stop eventually. I'm persevering though and will continue to try it everyday till it tastes right lol.
I thought I was going to be really on edge while I was home and I definitely was the first few days but a friend actually said to me the worst that would probably happen is I'd get rejection and that would feel like flu so that kind of made me relax a bit and I've just been really enjoying being home and it's also kind of a security blanket knowing that you're never that far away from a clinic appointment in these early stages so I know if something doesn't feel quite right there's always someone on the end of the phone or I have a clinic appointment in the next few days. Not that I've needed that so far but it's nice to know :D.