Monday, 22 September 2014

Instagram Diary...

Instagram --> @staciep90
You guys seemed to enjoy my last Instagram Diary and I haven't done one since the beginning of August so here is the next installment.

1. Me in my Princess Jasmine oufit  2. And again  3. Yummy strawberries  4. Daisy Necklace 
5. Albus Dumbledore wisdom  6. "Never Grow up" blogpost  7. My Kerry Alex Thorpe trust t-shirt  
8. My Kerry Alex Thorpe band  9. Ant and Dec time  10. Ant and Dec stage  11. Yum nutty chocolate 
12. Ant and Dec blogpost  13. Me and meggy in Reveal magazine  14. Good old Book 
15. Really gross coke  16. Millies Cookies  17. Smoothie!  18. In the Mail Online  
19. Toffee Popcorn!  20. Getting our Bake on  21. Eyes...  22. My baby Oliver  
23. Old school Jumanji  24. Xfactor goodies  25. My baby Alfred  26. Magic Tea  27. New Necklace  28. Pretty!  
29. Maggs London Make-up bag  30. Ready for Papworth  31. Nutella goodness  
32. Papworth blogpost  33. Little late night treats  34. Getting all snuggly  35. Snuggly with Oliver  
36. 2 YEARS 5 MONTHS blogpost  37. Trying to be healthy  38. Ready for Hammersmith

As always, thank-you for reading guys and chat soon 

Saturday, 20 September 2014



I don't know how to explain entirely to you guys what waiting for a transplant is like especially if it isn't something you've had to experience or unless you've known someone who's experienced it, you'll kind of know but also not entirely either. 

Someone once said to me "It must be like waiting for Christmas?" No it's not is the simple answer to that one. Christmas will happen, it's inevitable the 25th of December will come round every year and you know it will, there are no ifs or maybes it will happen full stop. Transplant is something else entirely. I suppose the easiest thing to compare it to is the lottery, as long as you're on the list (or in lottery terms have a ticket) you're in the running to win the prize, the prize in this case being the organs I need but like the lottery you have no idea if you will ever be picked or meet the requirements to win. In the lottery you need the matching numbers with transplant you need to match your tissue type, blood type, body type, antibodies numbers etc. That however is where the metaphor ends if you don't win the lottery your life does not end it will carry on, however if I don't win my personal lottery the outcome won't be so nice. 

2 years and 5 months is a really long time and it is nearly 10% of my life so far which is crazy. While I've been waiting there have been times where I've been reluctant for it to happen on certain dates because I've planned something and already paid for it or I just have really wanted to do something I've planned. I've got to the point where I don't care. In jest with my consultant on Friday I requested that it happen around now so I could be recovered enough to be home for my birthday and christmas and I'm also determined that I want it to happen in 2014, they all laughed at me because obviously you can't just schedule it in like that, how I wish it were that easy. I have a few things planned in the next couple of months like the Cosmo Blog Awards, Bernice's 'Live Life Give Life' party, going to Harry Potter Studios with Megan, Bernice, Gina and Rosie for mine and meg's birthday. As much as I want to do all of those things I just feel like my transplant needs to happen now, no matter what I have planned. 

I wasn't ready last year and I know I wasn't. This year has prepared me for what I need to do, what I have to have done. My disease is so unpredictable though because I have days where I'm seemingly well and you think "Yeah, I could live the rest of my life like this. Maybe." Then you aren't well, you can't get out of bed even going for a shower is not an option, the energy just isn't there for you to waste it on that you need to conserve it so you aren't asleep for the entire day. They are the days when  you think "Nope, I have to do this because life isn't supposed to be like this." I still have the good days and I take advantage of them but now I know no matter how many good days I have there will always be ten times more bad days and no-one should have to live their lives for the occasional good day. I know transplant will be hard and I will have to fight like I've never done before, but it is the life that I have dreamt of that I will be fighting for and it will be so worth it in the end and I don't care what I have planned because what I'll be fighting for is something I've been planning, for so much longer.

This journey is a hard one and one I willingly chose so although I complain often about how long I have been waiting it IS what I signed up for even though I didn't anticipate this wait I knew it was a possibility though, I just drew the short straw. My long wait has given me perspective I might not otherwise have had. I have gained life long friends from this experience and no matter how long the rest of my wait is I know they will always be there for me. My long wait has fully prepared me for what is to come even though you can't always be entirely prepared I suppose, there are some things you just have to experience, dive in head first and I think transplant has a lot of that aspect going for it. If you knew entirely what was going to happen no-one would probably ever do it.

I just want to thank all of you have been with me on this exceedingly long journey whether you simply read my blog, post the occasional comment, tweet or Facebook message me I appreciate the support you all give me so much, it means a lot.   

As always, thank-you for reading guys and chat soon 

Wednesday, 17 September 2014

Alton Towers getaway...

This weekend my little nephew turned FOUR which is insane in itself. I brought him transformers toys which he really wanted and seemed to really enjoy, he had a little super hero party were he was supposed to be batman but kids being kids he kept the outfit on for about 10 minutes and took it off. Little spencer got to be Hulk he wasn't fond of the wig bless him but looked SO cute in his outfit. 

On Monday Megan, Candice, Warren, Jaydon, Spencer and I all headed off to Alton Towers for a little surprise for Jaydon's birthday. We all stayed in the Splash landing hotel which is clearly aimed entirely for kids it kind of reminded me of Neverland from the "Hook" movie, you know the one with Robin Williams in? We left at stupid o'clock aka 5:30 on Monday morning and got to the Hotel for about 9:15ish and got straight to the fun. IT was obviously mainly for Jaydon and Spencer so we headed straight to the CBeebies land part of the park. I think Jaydon entered his version of heaven bless his little heart. 

WE spent most of the Monday in the CBeebies part of the park and did a few other things on the rest of the park like Pirate ships and Water rapids which I could actually do (YEY) and then the Tuesday we made our way round to the big rides for Meggy and Warren, they did a bunch; the smiler, Oblivian, Air and bunch others that I don't know the name of but because of my issues and Candy being pregnant we couldn't do them but it was so funny watching Meg she can't help but scream. 

Me and meg left about 1pm on Tuesday and left Candy, Warren and the boys to do some more CBeebies land and the aquarium we had so much fun though! Honestly I wouldn't say the place is the most disabled friendly place on the planet even if you are in a wheelchair the hills are insane and I feel so bad for Meg and Warren for having to push me up and down them but they had a nice workout LOL. I will definitely be going back there after my transplant :)   

Photos are either off of my camera or from my sister Candice :)
Hotel Lobby
Hotel Lobby
Hotel Lobby
Splash park in the Hotel
Jaydon in his bunk bed  in his hotel room that he loved!!
Hotel Lobby
Warren and Meggy on Air
Jaydon enjoying a ride
Cute Family pic on the "Night Garden" boat ride
Tired Jaydude 
Happy Spencer!
As always, thank-you for reading guys and chat soon